It's a been some time since I last posted on here - sorry all! The last couple of months have been non-stop. As mentioned in one of my previous posts, I was going to be sent out of state for further autonomic testing. Well, last week I traveled to Virginia to a Dysautonomia Specialist to… Continue reading Chronicle VIII: My Chronic Illness Travels
It seems that those of us who suffer from chronic illness, especially those who have what are called “uncommon disorders,” are continuously put to the test and we must be our number one advocates for ourselves and for our condition(s). Physicians often wonder why patients resort to looking up information online. Well, it’s because most… Continue reading Chronicle VII: The Negative Thoughts
I have come to realize how difficult it is to be “okay” when I am not actually okay. In the past, when someone asked me how I was doing, I would be honest and say, “I am good. How are you?” Now when I say, “I’m good,” it’s often a lie. I find it’s easier… Continue reading Chronicle VI: To My Friends and Family That I Make Plans With – I Am Sorry
I seem to be caught in this vicious cycle where I go to a new or existing doctor and I can tell they’re not 100% engaged or informed about my illness. They usually end up contradicting what previous or existing physicians have said and I leave with more questions than answers. Then I get home,… Continue reading Chronicle IV: Health Anxiety
Most days, chronic illness wins the fight. It makes us appreciate the better days that much more.
I moved across states with the dreams of working at a University. I had been trying to get into Higher Education for quite some time when I lived in my previous home state. Along with hopes of landing our ideal jobs, my husband and I also had our sights set on buying our first house… Continue reading Chronicle I: Lessons I Have Learned So Far from Chronic Illness