Today, I found out that I have chronic, late stage Lyme Disease. This comes over a year after my POTS diagnosis and almost two years after the onset of my symptoms. Chronic Lyme Disease is a very controversial diagnosis, in which most people, including various doctors don’t actually believe exists. However, more and more research… Continue reading Chronicle XVII: A Bittersweet Diagnosis
Tag: EHLERS-DANLOS SYNDROME
Chronicle XII: “How’s it Going?”
It's been a while since I provided a formal update on here! Where to begin? So, it turns out that I also have Pelvic Congestion Syndrome which is possibly being caused by May-Thurner Syndrome. Both of these syndromes are a direct result of having Ehlers-Danlos Syndrome. This is what has been causing my intense pelvic… Continue reading Chronicle XII: “How’s it Going?”
Chronicle X: The Guilt
You know that feeling of utter guilt that hits you dead in the stomach when you know you've done something questionable? Or those seemingly endless thoughts that convince you that everything is your fault? Guilt and helplessness often sink in when you become chronically ill. Maybe if you had eaten better or if you had… Continue reading Chronicle X: The Guilt
Chronicle IX: More Updates
I had my second appointment with the Autonomic Specialist this past week and he is sending me off to a Vascular Surgeon, because he confirmed vascular compression issues on my CT Angiogram. I am going for a consultation on August 6th with vascular surgery here at Duke in North Carolina to find out next steps… Continue reading Chronicle IX: More Updates
Chronicle VIII: My Chronic Illness Travels
It's a been some time since I last posted on here - sorry all! The last couple of months have been non-stop. As mentioned in one of my previous posts, I was going to be sent out of state for further autonomic testing. Well, last week I traveled to Virginia to a Dysautonomia Specialist to… Continue reading Chronicle VIII: My Chronic Illness Travels
The Chronicles of Chronic Illness 