You know that feeling of utter guilt that hits you dead in the stomach when you know you've done something questionable? Or those seemingly endless thoughts that convince you that everything is your fault? Guilt and helplessness often sink in when you become chronically ill. Maybe if you had eaten better or if you had… Continue reading Chronicle X: The Guilt
I had my second appointment with the Autonomic Specialist this past week and he is sending me off to a Vascular Surgeon, because he confirmed vascular compression issues on my CT Angiogram. I am going for a consultation on August 6th with vascular surgery here at Duke in North Carolina to find out next steps… Continue reading Chronicle IX: More Updates
It's a been some time since I last posted on here - sorry all! The last couple of months have been non-stop. As mentioned in one of my previous posts, I was going to be sent out of state for further autonomic testing. Well, last week I traveled to Virginia to a Dysautonomia Specialist to… Continue reading Chronicle VIII: My Chronic Illness Travels
It seems that those of us who suffer from chronic illness, especially those who have what are called “uncommon disorders,” are continuously put to the test and we must be our number one advocates for ourselves and for our condition(s). Physicians often wonder why patients resort to looking up information online. Well, it’s because most… Continue reading Chronicle VII: The Negative Thoughts
I have come to realize how difficult it is to be “okay” when I am not actually okay. In the past, when someone asked me how I was doing, I would be honest and say, “I am good. How are you?” Now when I say, “I’m good,” it’s often a lie. I find it’s easier… Continue reading Chronicle VI: To My Friends and Family That I Make Plans With – I Am Sorry
Most days, chronic illness wins the fight. It makes us appreciate the better days that much more.
I moved across states with the dreams of working at a University. I had been trying to get into Higher Education for quite some time when I lived in my previous home state. Along with hopes of landing our ideal jobs, my husband and I also had our sights set on buying our first house… Continue reading Chronicle I: Lessons I Have Learned So Far from Chronic Illness